Flagship Journal - European Medical Journal

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4 Mins
20 Sep 2022

Diagnostic Testing Technologies, Care, and Treatments: Best Practices and Evidence

IN THIS year’s European Conference on Rare Diseases & Orphan Products (ECRD), experts, patients, and other stakeholders came together in a session to discuss the best practices for diagnosis and care for people with rare diseases.
5 Mins
20 Sep 2022

Seeing Is Believing: Invisibility Exacerbates Inequality for Patients Living with Rare Disease

AT the 11th European Conference on Rare Diseases (ECRD), held virtually between 27th June and 1st July as an official event of the 2022 French Presidency of the Council of the European Union (EU), experts discussed how invisibility in rare disease acts as a roadblock to reducing inequalities.
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