We are delighted to share a special haematology roundtable exploring a clinician–patient dialogue on haemophilia care, featuring a leading patient advocate, Laurence Woollard, and two members of the executive board of the European Association of Haemophilia and Allied Disorders (EAHAD), Robert Klamroth and Wolfgang Miesbach.
The discussion centres on:
- The current state of haemophilia care in Europe today
- How gene therapies are transforming treatment
- The importance of patient advocacy and persist unmet needs
- Reflections on shared decision-making for personalised haemophilia care
- How digital health is expected to enhance future haemophilia management
Speakers:
Robert Klamroth1
Wolfgang Miesbach2
Laurence Woolard3
1. Head of the Department of Internal Medicine, Vascular Medicine and Coagulation Disorders; Director of the Comprehensive Care Hemophilia Treatment Center and the Hemostasis and Thrombosis Unit at the Vivantes Klinikum Friedrichshain, Berlin, Germany
2. Professor of Medicine at Frankfurt University Hospital; Head of the Department of Coagulation Disorders and the Comprehensive Care Haemophilia Centre at Goethe University Hospital, Frankfurt, Germany
3. Director at ‘On the Pulse’ Consultancy
Timestamps:
00:00 – Introduction
02:29 – Haemophilia care today
07:19 – Advances in haemophilia management
13:35 – Integrating gene therapy
16:50 – Post-treatment monitoring importance
23:46 – Psychosocial impact of gene therapy
29:52 – Laurence’s haemophilia journey
37:02 – Unmet needs in haemophilia
40:00 – Navigating diagnosis conversations
42:30 – Shared decision-making
50:30 – Next major breakthroughs
59:50 – Panellist inspirations
