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EMJ 7.3 2022
Welcome to our third issue of the EMJ flagship for 2023, which focuses on rare diseases. Our team attended the European Conference on Rare Diseases (ECRD) at the end of June, and we are delighted to bring you the highlights from the event. The ECRD saw patients, clinicians, policy makers, and other key stakeholders come together to enable innovation and help drive rare disease policies across Europe.
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Review of the 11th European Conference on Rare Diseases and Orphan Products 2022
THE 11th European Conference on Rare Diseases (ECRD), partner organisation of the EURORDIS-Rare Diseases Europe, is the largest patient-led rare disease policy event. The fully virtual conference took place from 27th June to 1st July 2022 and saw over 1,000 attendees, including patient advocates, policymakers, researchers, clinicians, healthcare professionals, healthcare industry representatives, academics, payers, regulators, and member state representatives.
Diagnostic Testing Technologies, Care, and Treatments: Best Practices and Evidence
IN THIS year’s European Conference on Rare Diseases & Orphan Products (ECRD), experts, patients, and other stakeholders came together in a session to discuss the best practices for diagnosis and care for people with rare diseases.