Words by Isabel O’Brien
A new report from the ABPI and the Association of Medical Research Charities (AMRC) calls for greater inclusivity in clinical research, highlighting that current trials often fail to reflect the UK’s diverse population.
New Ipsos data, referenced in the report, shows that while 58% of UK adults are willing to join clinical trials, this drops to 41% among ethnic minority adults. Participation rates among invited ethnic minority adults are also lower, at 36% compared to 46% for white adults. Black, African, or Caribbean women are more likely to feel uncomfortable in healthcare settings and to feel unheard by trial staff.
The report, ‘Achieving inclusivity in clinical research’, identifies practical barriers such as travel costs, childcare and inflexible appointment times, as well as issues with community trust and engagement. It calls for a national strategy, better sharing of best practice and robust methods for measuring diversity in trials.
Practical steps include providing financial support, running trials in community and mobile settings and offering multi-language options.
Dr Janet Valentine, Executive Director of Innovation and Research Policy, ABPI, said: “We hope this report catalyses the necessary system changes that will support more eligible patients taking part in clinical research.” With Nicola Perrin, Chief Executive, AMRC, adding: “Collaborative and coordinated effort across the whole system is needed to drive lasting change.”
With these actions, the report concludes, clinical trials stand a chance of better serving the needs of all communities in the future.
