Hema Now: Improving Rare Blood Disorder Care - European Medical Journal

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Hema Now: Improving Rare Blood Disorder Care

Hematology

Hema Now

In this episode of Hema Now, Lucas Kühne explores the evolving landscape of immune thrombotic thrombocytopenic purpura, discussing advances in treatment, the importance of early recognition and accurate diagnosis, the growing role of real-world evidence, and why international collaboration is critical to accelerating research and improving patient care in rare thrombotic microangiopathies.

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Improving Rare Blood Disorder Care

 

Lucas Kühne is a specialist in Internal Medicine and researcher at University Hospital Cologne, Germany. After completing his medical training at the Universities of Cologne and Freiburg, with clinical electives in Southampton, UK, and Luxembourg, he developed a particular interest in thrombotic microangiopathies, especially immune thrombotic thrombocytopenic purpura and atypical haemolytic uraemic syndrome.

 

Timestamps:    

00:00 – Introduction

01:40 – Career inspiration and TMA interest

03:11 – Major advances in iTTP treatment

05:05 – Recognising iTTP earlier

07:08 – Distinguishing between TMAs

09:05 – Value of real-world evidence

12:13 – Future priorities in iTTP research

13:32 – Importance of research collaboration

14:57 – Advice for future researchers

15:53 – Future of TMA care

 

Disclaimer: The opinions expressed in this episode belong to the speakers and do not necessarily represent the opinions of EMJ.

Keywords: immune thrombotic thrombocytopenic purpura, thrombotic microangiopathy, rare blood disorders

 

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